When systems fail you 🫂👀👽
- amarathyst

- Jan 31
- 4 min read
🌫️ INTRO — WHEN SYSTEMS FAIL QUIETLY 🕯️🌧️
This window isn’t about one denial letter or one bad appointment.
It’s about what happens when danger, bureaucracy, illness, and disbelief stack on top of each other until a person is asked to function inside conditions that were never survivable to begin with. 🌫️
The story begins with safety eroding at home, continues through a disability process that never fully evaluated what mattered, and lands in the emotional whiplash of being told—again—that the problem is effort, not environment. 🕯️
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🧱 PART 1 — SITUATIONAL COLLAPSE 🕳️
The living situation collapses first.
An unsafe presence in the home escalates from staring and whispers to touch in public—hand on shoulder and neck—followed by denial, minimization, and forced proximity. 🕳️
Safety becomes conditional.
Movement becomes restricted.
The bedroom becomes the only refuge. 🛑
At the same time, illness tightens the trap.
Cancer appointments dominate weeks.
COVID removes support.
Food access falters.
Fear becomes routine. 🌧️
The body adapts by freezing, ignoring laughter, and learning to endure.
Not because it’s okay—but because escape is blocked. 🧠
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⚙️ PART 2 — SYSTEM COLLISION 🗂️
Into this collapse enters the SSA process.
Autism is listed.
Confusion and traits are visible.
A letter promises a “mental exam.” 📄
What arrives is not a full Mental Consultative Examination.
It’s a brief screen and a payee-capacity check—administrative, not functional, not diagnostic. ❌
The record stops developing.
No autism-informed evaluation.
No functional capacity assessment.
No third-party context requested at the right time. 🗂️
The denial lands not because nothing is wrong—but because the system never tested the right things. ⚙️
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🪞 PART 3 — IDENTITY DAMAGE 💔
Then comes the internal fracture.
Different answers on function reports.
A third-party form filled out under stress and illness.
A mother overwhelmed, minimizing to survive. 💔
The mismatch becomes another reason to doubt the self.
“Did I do it wrong?”
“Did I fail to prove it?”
“Did I not lift a finger?” 🪞
But the truth is quieter and harsher:
Invisible labor doesn’t register in broken systems.
Masking looks like functioning.
Survival looks like inaction. 🫥
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🫂
🌑 PART 4 — DARK NIGHT OF THE SOUL 🕯️
This is the point where endurance stops feeling noble and starts feeling like erasure.
Being told safety concerns are “complaints” lands heavier than any denial letter. 🕯️
The nervous system knows the truth before language catches up.
Hypervigilance replaces rest.
Confusion deepens under pressure.
Shame creeps in where protection should have been. 🌑
The belief forms quietly: If I were stronger, this wouldn’t be happening.
But strength was never the missing variable.
Safety was. 🧠
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🔥 PART 5 — PHOENIX RISING (WITHOUT DENIAL) 🌅
Reframing begins—not as triumph, but as clarity.
The realization settles in that the failure was procedural, not personal. 🌅
The “mental exam” was not a mental exam.
The autism signs were not ignored—they were misinterpreted.
The function reports weren’t wrong—they were incomplete snapshots under strain. 🔥
Understanding replaces self-blame.
Appeal becomes correction, not begging.
Language shifts from identity to function. 🧩
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🎭 PART 6 — SITCOM REMIX (ABSURDITY AS TRUTH EXPOSURE) 📺
If this were a sitcom, the laugh track would play at all the wrong moments.
A “mental exam” that tests money handling. 📺
A system asking for calm consistency inside chaos.
Paperwork deadlines colliding with illness, danger, and exhaustion. 🎭
The humor isn’t dismissive—it’s revealing.
Absurdity exposes what logic tried to hide.
The script was broken long before the character questioned themselves. 🎬
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🌱 PART 7 — GROUNDED CLOSING (STABILIZATION) 🧭
Stabilization doesn’t mean resolution.
It means anchoring facts. 🧭
The appeal deadline is known.
The evaluation gaps are named.
The unsafe environment is acknowledged. 🌱
Energy is conserved for what matters.
One step replaces ten impossible ones.
Support is allowed to come from outside the house. 🧩
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🌤️ OUTRO — NAMING THE TRUTH WITHOUT APOLOGY 🌾
This window doesn’t end with everything fixed.
It ends with something more important: accurate self-perception. 🌾
Not lazy.
Not dramatic.
Not failing.
A person navigating danger, disability, and a system that mistook masking for capacity.
The story isn’t over—but it’s finally being told in the right language. 🌤️
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🫂
🕊️ EPILOGUE — AFTER THE WINDOW CLOSES 🌌
After the window closes, nothing magically resolves.
But something critical shifts: the story stops being told through blame. 🌌
What remains is clarity.
The difference between not evaluated and not disabled.
Between survival responses and lack of effort. 🕊️
The epilogue is quieter than the crisis.
It lives in steadier breath, firmer language, and the refusal to disappear just to keep broken systems comfortable. 🌒
📣 CTA — A DIFFERENT KIND OF ASK 🧭
If you are reading this and recognize yourself anywhere in it, here is the ask:
Pause before self-blame. 🧭
Name gaps as gaps, not failures.
Translate lived experience into functional truth.
Appeals are not confessions of weakness.
They are corrections. 📣
Seek advocates.
Use precise language.
Protect energy like it matters—because it does. 🌱
✍️ ABOUT THE AUTHOR — STILL HERE 🌱
The author is an autistic adult navigating disability, unsafe environments, and bureaucratic systems that often mistake endurance for capacity. 🌱
This work is not written from hindsight or resolution, but from the middle—where clarity is still forming and survival is still active.
They write to document, to stabilize, and to reclaim narrative accuracy when systems fail to ask the right questions. ✍️


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